Rare family days: a family empowerment programme
نویسندگان
چکیده
منابع مشابه
Rare family days: a family empowerment programme
Having a seriously ill child is intrusive for the entire family. Still, knowledge about how to manage family life for these families is limited, especially when the diagnosis is rare. To offer tools to cope with their situation, Rare Disorders Denmark (RDD) developed Rare Family Days (RFD). RFD is an empowerment programme targeted families with children carrying a rare disease. The programme pu...
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ژورنال
عنوان ژورنال: Orphanet Journal of Rare Diseases
سال: 2012
ISSN: 1750-1172
DOI: 10.1186/1750-1172-7-s2-a34